Discovery
The Idea
Big data meets health care and treatment—that was the vision of Jukka-Pekka "JP" Onnela, PhD, when he conceived the Beiwe app. As the mobile component of the Beiwe research platform, it leverages modern smartphone technology to collect clinical study data. Rocket Farm Studios had the privilege of collaborating with Onnela to bring this app to life, creating a more efficient and effective way to gather crucial health information.
Onnela, a Fulbright scholar from Finland, now serves as an Assistant Professor of Biostatistics at Harvard University, where he leads the Onnela Lab. His research focuses on statistical network science and digital phenotyping. “We study social and biological networks, creating new mathematical models to understand them. Digital phenotyping is about using personal digital devices to quantify human behavior and social interactions in real time,” explains Onnela.
At its core, the Beiwe app aims to harness data to better understand human behavior. Onnela and his team identified a need for more accurate patient data collection, especially in healthcare settings. “Historically, collecting patient outcome data before and after treatment has been a challenge,” he says. By using smartphones to gather real-time data, Beiwe helps create digital phenotypes that provide valuable insights into patient behavior, particularly for those dealing with certain diseases.
“The idea is to move away from sporadic hospital visits and toward continuous data collection through digital ‘breadcrumbs.’ For instance, one of our collaborators, a neurosurgeon, can now monitor his patients before and after brain surgery with more data points, transforming these into biomedically useful information.”
Design
UI Design
When Onnela partnered with Rocket Farm Studios to develop the Beiwe iOS app, the design process was centered around simplicity. “We knew the app had to be easy to use, especially for patients who may have cognitive or physical impairments,” explains Onnela.
The app is designed to collect both passive data (like sensor-based information) and active data (through surveys), providing a comprehensive view of a patient’s cognitive and physical functions. "We monitor things like mobility, social interaction, and sleep patterns," Onnela notes. By using GPS and screen activity data, the app can even calculate time spent at home or analyze sleep behavior with remarkable accuracy..
Beiwe is also designed to track behavioral changes before and after medical treatments. “We can collect data months before an operation and continue for months after, giving us a much clearer picture of recovery than traditional methods,” says Onnela..
Privacy and security were critical from the outset. “We made sure that patient data was fully encrypted, with identifiers scrambled to ensure privacy,” Onnela explains. The app’s rigorous focus on security has led to approvals for use in over 10 studies, demonstrating its reliability and adherence to data protection standards.
Development
The development process required close collaboration between Rocket Farm Studios and Onnela’s back-end developers. The app had to interact seamlessly with Beiwe’s established platform while remaining customizable to fit the needs of different studies.
One key challenge was meeting the expectations of iOS users, which differ from Android users. “Rocket Farm helped us realize that simply copying the Android app over wouldn’t work. We had to design for the iOS experience,” says Onnela. Using Apple’s ResearchKit, the team optimized the user interface by displaying only one survey question at a time—a design choice that worked so well it was later adopted in the Android version too.